Henrietta Lacks’ immortal cells revolutionized medicine, yet her story highlights critical ethical issues around consent and racial inequality in science.

 

WHO honours Henrietta Lacks, whose cells changed medicine | Health News |  Al Jazeera

 

Henrietta Lacks, born in 1920 in Roanoke, Virginia, remains one of the most important and influential figures in modern medicine, despite never receiving recognition for her contributions during her lifetime.

Lacks’ story, one of scientific breakthrough and ethical controversy, has shaped how the medical community approaches issues of consent, race, and patient rights.

Her immortal cells, known as HeLa cells, have been used in countless medical studies and experiments, leading to major advancements in medicine and science. Yet, the history of how these cells came to be—and the life of the woman who provided them—was hidden for decades.

Henrietta Lacks was a poor African American woman who lived in the segregated South. In 1951, at the age of 31, she sought treatment at Johns Hopkins Hospital in Baltimore for what appeared to be a tumor in her cervix.

During her examination, Dr. Howard Jones, the gynecologist on her case, took a sample of the tumor without her knowledge or consent, a common practice at the time, especially for poor Black patients who were often treated as subjects of experimentation.

This sample led to the discovery of a unique characteristic: the cells from Lacks’ tumor were able to survive and reproduce indefinitely in culture, making them “immortal.” These cells, known as HeLa cells, would go on to change the course of medical science.

At the time, scientists were struggling to cultivate human cells outside of the body for research. HeLa cells, however, were able to replicate at an incredibly fast rate, providing researchers with an endless supply of living cells for experimentation.

This breakthrough made them a vital tool for many areas of research, from the development of the polio vaccine to cancer treatments, gene mapping, and studies on viruses and the effects of radiation. HeLa cells were even sent to space to study the effects of zero gravity on human cells.

The contributions of HeLa cells to scientific and medical advancements are immeasurable, and they continue to be used in laboratories around the world today.

 

The Story of Henrietta Lacks: Medical Ethics and Systemic Racism -  LabXchange

 

Yet Henrietta Lacks’ identity was not revealed for many years, and her family was never informed of the use of her cells. Her story remained unknown, and her family had no idea that her cells were being used to advance scientific research until decades later.

Despite the fact that HeLa cells were helping scientists develop life-saving treatments and contributing to major discoveries, Henrietta Lacks remained a faceless, nameless donor.

Her family was never compensated for the use of her cells, and for years, they were unaware of the profound impact her cells had on the field of medicine.

The ethical questions surrounding Lacks’ case began to surface in the 1970s when medical researchers, such as Dr. Roland Pattillo, began to advocate for recognition of her contribution.

However, it was not until 1997—46 years after Lacks’ death—that the U.S. government officially acknowledged her contribution to science.

Her family received an apology from the U.S. Department of Energy and were granted access to their mother’s medical records for the first time.

Despite the acknowledgement, Henrietta Lacks was not fully recognized for the impact she made on medical research until the 2010 publication of The Immortal Life of Henrietta Lacks by Rebecca Skloot, which brought her story into the spotlight.

The book and the subsequent film adaptation played a crucial role in educating the public about Lacks’ contributions and the ethical dilemmas surrounding her case.

It also shed light on the racial inequalities that were prevalent in the scientific and medical fields during the time Lacks’ cells were taken.

The fact that her cells were harvested without her consent was not an isolated incident but rather a reflection of the exploitation faced by African Americans in the healthcare system.

Lacks’ case remains a critical example of how the medical community has historically treated marginalized groups and the importance of informed consent and ethical medical practices.

 

The Immortal Life of Henrietta Lacks: Skloot, Rebecca: Amazon.com: Books

 

Henrietta Lacks’ story raises important questions about medical ethics and human rights, particularly the use of human tissue for scientific purposes.

Since the discovery of HeLa cells, significant changes have been made to the way human biological materials are handled in research.

The concept of informed consent, a principle that allows individuals to make decisions about how their bodies and biological materials are used, has become a cornerstone of modern medical ethics.

Additionally, Lacks’ legacy has spurred conversations about racial justice in healthcare, highlighting the need for more inclusive and equitable practices in medical research and treatment.

Today, Henrietta Lacks is remembered as a pioneer in medical science, although she never lived to see the impact her cells would have.

Numerous initiatives have been undertaken to honor her legacy, including the establishment of the Henrietta Lacks Memorial Award, which recognizes outstanding contributions to the field of biomedical research.

In 2013, a statue of Henrietta Lacks was unveiled at the National Institutes of Health in Bethesda, Maryland, and her story is taught in classrooms and medical schools as an example of the intersection of science, ethics, and race.

Henrietta Lacks’ enduring legacy is a reminder of how one woman’s cells changed the world, and how the story of her contribution was hidden for far too long.

Her immortal cells continue to save lives and drive forward the scientific discoveries that are shaping our understanding of medicine, disease, and the human body.

The story of Henrietta Lacks is not just one of scientific discovery but also one of justice and the fight for human dignity.

As we continue to make strides in medical science, we must remember the contributions of those who came before us, ensuring that their stories and legacies are never forgotten.

 

Summary: Henrietta Lacks’ immortal cells were central to numerous medical breakthroughs, but her story raises critical ethical issues regarding informed consent and the exploitation of African Americans in science.

Her legacy continues to shape modern medicine and spark conversations about racial inequality and medical ethics.